tag:blogger.com,1999:blog-6391621506207953335.post437043973914429791..comments2024-03-29T04:24:06.235-06:00Comments on Dominic's journey with AML: TubularSean Rooneyhttp://www.blogger.com/profile/03867122611240610029noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-6391621506207953335.post-67883257632013773242014-01-21T11:27:38.095-07:002014-01-21T11:27:38.095-07:00You know.. I sit back and reflect on the irony her...You know.. I sit back and reflect on the irony here. Your blog entries makes me chuckle yet the subject matter, a sick child is not a laughing matter. Thank you, Sean, for taking us on this journey with your family. Prayers are being said, fingers crossed, and all manner of hope and luck being wished for for your little boy. Take care.Anonymoushttps://www.blogger.com/profile/11449631335864421202noreply@blogger.comtag:blogger.com,1999:blog-6391621506207953335.post-38695264152251428632014-01-18T10:27:02.253-07:002014-01-18T10:27:02.253-07:00Sean and Trish,
These are some tough days for you...Sean and Trish, <br />These are some tough days for you and Dom. It's all a path to a cure - keep your eyes on the prize. There is no sugar-coating what you are going through. Some days are really going to suck. What the two of you have been great about is finding the joy and happiness in the moment, even the tough moments. It's impossible to not have feelings of worry and despair. Give them their time and let them go. Every day you have is a good day, in some way. Sometimes it can be a little harder to find the joy. Guaranteed, it is there when you look for it. <br /><br />I remember one time when Callum had to have treatment delayed because his blood counts were too low. He was absolutely devastated and thought something was wrong. He was reminded by a nurse that what it really meant is that the treatment was working. It was like brain gymnastics to start to think that <br /><br />There is no way that I can really understand what this is like for you. My experience was as a spouse, not a parent. Lots of issues are the same, and those are what I understand. Filter anything I say that doesn't work for you.<br /><br />Get as many cuddles as you can. When Dom is sleeping in your arms, or you are watching him sleep, close your eyes and visualize playing soccer with him, the first time you teach him to skate, watching him score his first goal in hockey, or make his first stop if he decides to play that crazy position of goaltender!<br /><br />When the going gets tough, breathe. That was likely the best advice I was ever given. Remember to breathe! <br /><br />What is happening now is because the treatment is working. It's all the set up to the grand finale of bone marrow transplant and.....a cure! <br /><br />Keep up the good work and the positive thoughts. You guys are doing amazing! <br /><br />Take care.<br />Lorna Scotthttps://www.blogger.com/profile/08826411620622404841noreply@blogger.com