tag:blogger.com,1999:blog-6391621506207953335.post7118015574997319194..comments2024-03-26T06:55:09.230-06:00Comments on Dominic's journey with AML: Weary of the weekendSean Rooneyhttp://www.blogger.com/profile/03867122611240610029noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-6391621506207953335.post-36601970903215725372014-03-26T08:12:50.157-06:002014-03-26T08:12:50.157-06:00I am a colleague of Erin's and I just wanted t...I am a colleague of Erin's and I just wanted to let you know that you are in our thoughts and prayers. Also, to let you know that there is definatley light at the end of the tunnel. My 21 year old son was diagnosed with ALL 2 years ago, he had his stem cell transplant in July 2012 and is doing really well today. The reason I wanted to share this with was not to tell our story but to let you know that we had the same frustrations with weekend staff at the Tom Baker. We got so frustrated that I told them, if my son's big toe hurt they were going to know about it. This might seem extreme but they don't kow your child like you do. I can't urge you enough to make sure you are heard and even if you think it is trivial. The bumps in your journey will get less and you won't remeber half of them when this is over.God bless you all and hang in there!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6391621506207953335.post-87958439220005993522014-03-24T17:22:09.300-06:002014-03-24T17:22:09.300-06:00I absolutely understand the "hospital weekend...I absolutely understand the "hospital weekend" that feels more like a week than a regular week. I'm so sorry Dom got sick over one of these weekends, as it seems to make them that much longer. I hope the poor little guy gets some relief soon, and Mommy and Daddy can worry a bit less. There are lots of people out there pulling for Dom and your family, and sending lots of warm wishes and love. Stay strong Dom, Mommy and Daddy! <3<br />Anonymoushttps://www.blogger.com/profile/01623757462798450331noreply@blogger.comtag:blogger.com,1999:blog-6391621506207953335.post-70069076930993492462014-03-24T17:01:18.180-06:002014-03-24T17:01:18.180-06:00What a tough weekend, Sean. Keep asking, prodding ...What a tough weekend, Sean. Keep asking, prodding and insisting. The medical community serves us. Keep that in mind. Yes, they work hard. Yes, they are more educated about the disease. They are not more educated about Dom. They don't like to be second guessed. They still make mistakes. If the worst thing to happen is you insist on a test or to have the onc on-call come in, and it ends up Dom is OK, so be it. That is what they are paid to do. They, like most people in our lives, get to have our trust until that is broken. It doesn't matter what it costs or who has to be called in - sometimes it's necessary. <br /><br />Well, my rant is over. I hope things start to perk up with Dom. The good thing is that once they find a cause and can treat it, he should start to get better. You will get through it. <br /><br />Take care,<br />Hugs<br />LornaLorna Scotthttps://www.blogger.com/profile/08826411620622404841noreply@blogger.comtag:blogger.com,1999:blog-6391621506207953335.post-49801296094972591422014-03-24T15:03:47.411-06:002014-03-24T15:03:47.411-06:00Hey Guys
Hang in there we had a similar round wit...Hey Guys<br />Hang in there we had a similar round with the weekend doctors about C's gall bladder. Quite the gong show but just know that all Dominic wants is you guys and all is ok in his world...aside from the yucky tummy. When things got crazy I really just tried to stay focused on C...everything else recedes and advocating up a storm seems just right!! You are doing a great job. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6391621506207953335.post-86303557845959622892014-03-24T12:55:28.584-06:002014-03-24T12:55:28.584-06:00Oh no :( Poor little guy. I don't understand w...Oh no :( Poor little guy. I don't understand why the 'top' doctors & nurses don't work on the weekends. Kimberlyhttps://www.blogger.com/profile/09131165342454711038noreply@blogger.com